|Nonurgent patients in the emergency department? A French formula to prevent misuse|
S Gentile, P Vignally, AC Durand, S Gainotti, R Sambuc, P Gerbeaux
BMC health services research 10 (1), 1-6, 2010
|The TREAT‐NMD D uchenne Muscular Dystrophy Registries: Conception, Design, and Utilization by Industry and Academia|
CL Bladen, K Rafferty, V Straub, S Monges, A Moresco, H Dawkins, A Roy, ...
Human mutation 34 (11), 1449-1457, 2013
|A personalist approach to public-health ethics|
C Petrini, S Gainotti
Bulletin of the World Health Organization 86, 624-629, 2008
|Improving the informed consent process in international collaborative rare disease research: effective consent for effective research|
S Gainotti, C Turner, S Woods, A Kole, P McCormack, H Lochmüller, ...
European Journal of Human Genetics 24 (9), 1248-1254, 2016
|‘You should at least ask’. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research|
P McCormack, A Kole, S Gainotti, D Mascalzoni, C Molster, H Lochmüller, ...
European Journal of Human Genetics 24 (10), 1403-1408, 2016
|Recommendations for improving the quality of rare disease registries|
Y Kodra, J Weinbach, M Posada-De-La-Paz, A Coi, SL Lemonnier, ...
International Journal of Environmental Research and Public Health 15 (8), 1644, 2018
|The EPIRARE proposal of a set of indicators and common data elements for the European platform for rare disease registration|
D Taruscio, E Mollo, S Gainotti, MP de la Paz, F Bianchi, L Vittozzi
Archives of Public Health 72 (1), 1-8, 2014
|Informed consent in clinical research in France: assessment and factors associated with therapeutic misconception|
IS Durand-Zaleski, C Alberti, P Durieux, X Duval, S Gottot, P Ravaud, ...
Journal of medical ethics 34 (9), e16-e16, 2008
|The current situation and needs of rare disease registries in Europe|
D Taruscio, S Gainotti, E Mollo, L Vittozzi, F Bianchi, M Ensini, M Posada
Public health genomics 16 (6), 288-298, 2013
|The RD-Connect Registry & Biobank Finder: a tool for sharing aggregated data and metadata among rare disease researchers|
S Gainotti, P Torreri, CM Wang, R Reihs, H Mueller, E Heslop, M Roos, ...
European Journal of Human Genetics 26 (5), 631-643, 2018
|Ethical models underpinning responses to threats to public health: a comparison of approaches to communicable disease control in Europe|
S Gainotti, N Moran, C Petrini, D Shickle
Bioethics 22 (9), 466-476, 2008
|Meeting patients’ right to the correct diagnosis: ongoing international initiatives on undiagnosed rare diseases and ethical and social issues|
S Gainotti, D Mascalzoni, V Bros-Facer, C Petrini, G Floridia, M Roos, ...
International journal of environmental research and public health 15 (10), 2072, 2018
|From compulsory to voluntary immunisation: Italy’s National Vaccination Plan (2005–7) and the ethical and organisational challenges facing public health policy-makers across Europe|
NE Moran, S Gainotti, C Petrini
Journal of medical ethics 34 (9), 669-674, 2008
|Ethical issues in uterine transplantation: psychological implications and informed consent|
C Petrini, S Gainotti, A Morresi, AN Costa
Transplantation proceedings 49 (4), 707-710, 2017
|A model for the European platform for rare disease registries|
L Vittozzi, S Gainotti, E Mollo, C Donati, D Taruscio
Public Health Genomics 16 (6), 299-304, 2013
|The quality of rare disease registries: evaluation and characterization|
A Coi, M Santoro, A Villaverde-Hueso, ML Di Paola, S Gainotti, ...
Public Health Genomics 19 (2), 108-115, 2016
|Rare disease registries classification and characterization: a data mining approach|
M Santoro, A Coi, ML Di Paola, AM Bianucci, S Gainotti, E Mollo, ...
Public health genomics 18 (2), 113-122, 2015
|How are the interests of incapacitated research participants protected through legislation? An Italian study on legal agency for dementia patients|
S Gainotti, SF Imperatori, S Spila-Alegiani, L Maggiore, F Galeotti, ...
PloS one 5 (6), e11150, 2010
|Insurance policies for clinical trials in the United States and in some European countries|
S Gainotti, C Petrini
|How legislation on decisional capacity can negatively affect the feasibility of clinical trials in patients with dementia|
F Galeotti, N Vanacore, S Gainotti, F Izzicupo, F Menniti-Ippolito, C Petrini, ...
Drugs & aging 29 (8), 607-614, 2012