Simon Woods
Simon Woods
Professor of Bioethics Newcastle University
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Diagnosis and management of spinal muscular atrophy: Part 1: Recommendations for diagnosis, rehabilitation, orthopedic and nutritional care
E Mercuri, RS Finkel, F Muntoni, B Wirth, J Montes, M Main, ES Mazzone, ...
Neuromuscular Disorders 28 (2), 103-115, 2018
Diagnosis and management of spinal muscular atrophy: Part 2: Pulmonary and acute care; medications, supplements and immunizations; other organ systems; and ethics
RS Finkel, E Mercuri, OH Meyer, AK Simonds, MK Schroth, RJ Graham, ...
Neuromuscular Disorders 28 (3), 197-207, 2018
International Charter of principles for sharing bio-specimens and data
D Mascalzoni, ES Dove, Y Rubinstein, HJS Dawkins, A Kole, ...
European Journal of Human Genetics 23 (6), 721-728, 2015
God palliativ vård: etiska och filosofiska aspekter
L Sandman, S Woods
Studentlitteratur, 2003
Conducting research with the terminally ill: challenges and considerations
K Beaver, K Luker, S Woods
International Journal of Palliative Nursing 5 (1), 13-17, 1999
The development of antisense oligonucleotide therapies for Duchenne muscular dystrophy: Report on a TREAT-NMD workshop hosted by the European Medicines Agency (EMA), on …
F Muntoni, P McCormack, S Woods
Neuromuscular Disorders 20 (5), 355-336, 2010
‘You should at least ask’. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research
P McCormack, A Kole, S Gainotti, D Mascalzoni, C Molster, H Lochmüller, ...
European Journal of Human Genetics 24 (10), 1403-1408, 2016
Improving the informed consent process in international collaborative rare disease research: effective consent for effective research
S Gainotti, C Turner, S Woods, A Kole, P McCormack, H Lochmüller, ...
European Journal of Human Genetics 24 (9), 1248-1254, 2016
Death'S Dominion: Ethics At The End Of Life: Ethics at the end of life
S Woods
McGraw-Hill Education (UK), 2006
Primary care services received during terminal illness
K Beaver, KA Luker, S Woods
International journal of palliative nursing 6 (5), 220-227, 2000
Nursing knowledge, theory and method revisited
K Booth, M Kenrick, S Woods
Journal of Advanced Nursing 26 (4), 804-811, 1997
Users’ views of palliative care services: ethical implications
S Woods, K Beaver, K Luker
Nursing ethics 7 (4), 314-326, 2000
The risk of re-identification versus the need to identify individuals in rare disease research
MG Hansson, H Lochmüller, O Riess, F Schaefer, M Orth, Y Rubinstein, ...
European Journal of Human Genetics 24 (11), 1553-1558, 2016
Therapeutic misconception: hope, trust and misconception in paediatric research
S Woods, LE Hagger, P McCormack
Health care analysis 22 (1), 3-21, 2014
218th ENMC International Workshop:: Revisiting the consensus on standards of care in SMA Naarden, The Netherlands, 19–21 February 2016
RS Finkel, T Sejersen, E Mercuri, E Bertini, K Chen, TO Crawford, ...
Neuromuscular Disorders 27 (6), 596-605, 2017
Respect for persons, autonomy and palliative care
S Woods
Medicine, Health Care and Philosophy 8 (2), 243-253, 2005
Guidance in Social and Ethical Issues Related to Clinical, Diagnostic Care and Novel Therapies for Hereditary Neuromuscular Rare Diseases:“Translating “the Translational
PLoS currents, 2013
Disputing the ethics of research: the challenge from bioethics and patient activism to the interpretation of the Declaration of Helsinki in clinical trials
S Woods, P McCormack
Bioethics 27 (5), 243-250, 2013
The risks of therapeutic misconception and individual patient (n= 1)“trials” in rare diseases such as Duchenne dystrophy
A Aartsma-Rus, P Furlong, E Vroom, GJ van Ommen, E Niks, C Straathof, ...
Neuromuscular disorders 21 (1), 13-15, 2011
The views of terminally ill people and lay carers on primary care services
K Beaver, K Luker, S Woods
International Journal of Palliative Nursing 5 (6), 266-274, 1999
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